10/02/2012

to be excited for

In the midst of the hospital and transplant fog there are some things that get lost or forgotten or put on the back–burner. Because we are so excited for the after–transplant chapter of our life we have compiled a list of adventures and everyday things we are so looking forward to.

Jas still has some more procedures to go (Nissen wrap and possibly another stomach procedure to help gastric emptying) and lots of recovering ahead of him. We spend a lot of time at Duke Clinic for appointments and labs and tests, and Jas has rehab at The Center for Living every day he isn't in the clinic.

We have a few more hills to climb, but all of this should lessen little by little over time and our lives should find some normalcy.


Our list, and in no particular order:

>> go on dates—like once a week
>> take a vacation/road trip
>> swim a lot
>> explore—enjoy where we're at
>> really celebrate holidays
>> sing
>> eat just like the average guy
>> go to the beach much more
>> visit Idaho
>> try invitro again*
>> ride bicycles at the beach
>> play basketball and frisbee and tennis and racquetball and catch
>> have a healthy, quiet, normal day
>> finish Optometry school

There is so much to be excited for.

...............................................................................................

*After we got to North Carolina and into the program we spoke with multiple people and specialists about the making a baby factor. It turns out women cannot have a baby after transplant, but men still have the possibility. If all goes well and he recovers nicely, the sperm should not be affected by the anti-rejection meds. In our situation, having to go through invitro fertilization, they suggest we wait a year post transplant to try try again.

So the answer is not no. It's quite a few steps higher than maybe. It's a very hesitant yes.
And that gives us hope again and that makes us happy.

(i still squirm at words like sperm. so... sorry for that)

10 comments:

Christy said...

So much to look forward to! I'm so excited for you both! I love the idea of a baby Egbert so keep thinking happy thoughts about that and when the time is right... :)

Cassie said...

Wouldn't a road trip to Ohio be so much fun?!? Ü

Someone told me that "Life is Weird". I say, Yes it is....So enjoy it. And your list is right on track for that.

Love you.

Andrea said...

I do hope you guys get to check Idaho off the list soon! I miss my home state, and know that sometimes those beautiful scenes can bring some of the best un-medical healing around! So happy for you both and this new chapter of your lives.

Andrea said...

I do hope you guys get to check Idaho off the list soon! I miss my home state, and know that sometimes those beautiful scenes can bring some of the best un-medical healing around! So happy for you both and this new chapter of your lives.

Meagan@Meagan Tells All said...

I giggled when I read sperm. I am a married woman! Why are those words just so weird. I still cringe and get SO nervous when I have to say vagina or even HEAR it at my gyno office. Eeeks.

Excited for you guys. My parents live in Charlotte and my brother just finished law school at Duke. I LOVE that area up there. NC is just so dang gorgeous in the fall.

ashley said...

I LOVE this list and this entire post. I feel like this is a great example of you two as people. You are so positive and optimistic. You are able to look forward to a great life even though you have faced some tough challenges. There are so many of us who have not gone through what you have and yet we struggle to even be happy. Reading this makes me want to improve my perspective and create a little list as well. Love you.

Battfam said...

It's always good to make plans, isn't it. Also, just for the record, I squirmed a little too.

Blogger25 said...

I don't even like the word sperm either, and I am a mother! LOL. I just call them "spermies". Eh, oh well. I am glad all is well.

Julia Warren said...

Oh man, this is awesome...so many things to look forward to and rejoice for!!!! I am so thrilled that in vitro is still on the table for you guys. SO THRILLED

I read your last post aloud to Chris while we were driving to Utah a few days ago and literally laughed and cried...it was so amazing to read all the details. Thank you for letting us be a part of your journey.

Lindz said...

My brother also has CF and is married, and he just got a double lung transplant on Saturday. I have enjoyed following your blog and it has been inspiring as I have followed both your journey and my brother's journey.