6/21/2012

An exhausting eval week and Duke looks like a castle

Duke's clinic facility is impressive, very very beautiful. And North Carolina peeps are super nice—Southern Hospitality is alive and well.

This was an intense week of more tests than we knew existed and so much waiting waiting waiting in waiting rooms. My sissie Cassie drove from Ohio to be with us and drive us around and help us though the week. We seriously could not have made it without her. It was a long week and physically and emotionally exhausting for everyone involved.

It wasn't all hospital and no fun (although it came pretty close to being just that). We were treated to some local treasures—Hog Heaven which had some awesome North Carolina bbq and where we tried our very first hush puppies (I'm a fan, Jas thinks they're super wierd). And Locopops which provided us with the tastiest gourmet popsicle deserts for two nights in a row (strawberries and cream and Mexican chocolate were the clear winners).

Thank you to our brand new friends Amy and Clark for introducing us to those places listed above, but more importantly for introducing us to the Alder family, who so graciously let us stay in their home for the week. Thank you so much Alder's. We cannot believe your kindness and generosity! Thank you again and again.

The biggest drag of the trip might have been Jas getting to have a tube threaded through his nose and down his throat to his stomach to measure his acid reflux (among other nasty things) for 24 hours. For some reason the giant patch of scotch tape smeared across his cheek was really sad.

We're reading this together right now, almost finished actually. It has made us laugh, made us cry and made us realize what we're going through really isn't so bad and through incredibly hard times we can still find hope and joy.

Pick yourself up a copy. You'll be glad ya did.

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Now for the big news!! (hope you're still with me)

Duke's transplant board met together yesterday and we got a call from them same–day, which kind of shocked us—they had told us to expect a call about a week after their meeting. They want us to relocate to North Carolina ASAP and have Jason do some more testing (like liver biopsies and stuff) and start their pulmonary rehab to prepare for transplant.

This will all happen before getting listed—meaning, Jason is not yet listed.

The process at Duke is different from other centers. They want their candidates to be fully prepared for transplant before listing them; they don't list right after the initial evaluation, they run a million more tests and require a certain number of rehab sessions to be sure the patient is really ready.

So the ball is rolling along and it feels good to move forward.... but please excuse us while we scramble to figure out how to move cross-country in like two weeks!

13 comments:

C & S said...

You two are amazing...I wish Omaha was on the way to North Carolina, you would for sure be welcome to stay the night at our place. Good luck with everything!!!

Steve and Stephanie said...

:) :(

Geoff and Christy said...

Wow! That is amazing that they called so quickly and are starting the process. Hopefully he will be listed soon! It's crazy that you have to move so quickly but I can tell you it can be done! When we moved back to CA a few years ago (we lived in Vegas for a few years) we had 1 week to move once Geoff found his job. I had to pack up a whole house with 2 kids worth of stuff in a week and I did it (with some help).
Let me know if you need any help with anything. :)

Amy and Clark said...

Good luck! We eagerly await your arrival! Let us know what we can do to help on the NC end!

Rachael said...

Wow! Good luck! We'll have to drive out to NC to see you guys! You're in our prayers

The Bensons said...

So glad the ball is moving for you guys! I'll keep praying you get on the list ASAP Jason. You both are such an inspiration to me. Keep your heads up and remember how many people are behind you. Much love!

Emily said...

I commented on one of your posts a few weeks ago, and have been checking back in to see how things are going for you and Jason. We don't know each other, but I wanted you to know my husband and I have been praying for you guys, and wishing you all the best. Hoping you get good news from Duke!

from head 2 toe said...

Glad to hear the news from Duke is good! You are so positive- I love it. Know that people pray for you both. As for moving tips, we just moved from AZ to MI. My tip is to call moving companies with an estimated moving cost (including gas, hotels, etc) and have them match it. With the economy, moving companies are getting a big hit, so they will most likely do it for you at a major discount! Have them tow a car too & leave it all up to them! Good luck!

fashion and margarita said...

I'm quite a new reader here through "The Daybook" and was happy to read your news! Just fyi I'm keeping my fingers crossed for xou two from Europe:)

Brooke Cushman said...

You two are so sweet. :)

How Sweet It Is said...

I'm so glad things are moving along quickly! That is great. I love reading your updates and continue to pray for you and Jason daily! Your strength is amazing! Xoxo

Rebecca said...

Praying for you both, I hope he gets on the list!:)And I will try to find that book.

Angie & Neal said...

What big news! Praying he gets listed. Good luck with the move across country! Wish we were there to help ya pack and move and all the other stuff you need done before you head out. I'm sad we missed the BBQ too but it looks like it was awesome!

Continuing to pray for you always.