3/11/2012

the boy's back in town

Monday evening Jason came home from the hospital and I took off my last yellow visitor tag (totaling 21 yellow visiter tags in all), and the home care has commenced.

Game on.

We got four weeks of home IVs through PIC line three times a day. We got therapy and walks and rehab everyday.  We got a kitchen counter, kitchen table, hall cupboard and boxes in the next room lined with meds. And we got our game face on.


We don't really have any new information about being listed at any transplant centers. Hopefully we'll know more next week...... I have a feeling there is going to be a whole lot more of this waiting stuff. We're just getting our feet wet. But we coo.

Jason's working hard to get back to himself, working hard through physical therapy and rehab and treatments. He says he feels better than he has in months and hopefully he'll keep right on improving from here. He's getting stronger and he's looking healthier—there are muscles starting to form on his calves again, his feet are definitely not as swollen and his face is starting to look a little less puffy and more like Jason. Pretty soon I think we'll get the old Jas back.... as long as we keep doing our best.

In the next coming weeks we will be visited by moms and sisters and brothers (lots of family) who have set aside their schedules and offered to come to our aide. We are looking forward to seeing you all. Thank you and we love you.

Kelsie and Karli, your little weekend visit while Jas was in the hospital brightened up what had been a very gloomy and lonely time for me. Thank you so much for coming, I just loved our time together. Thanks Tami for sending your love along with Karli and Kelsie in the form of a cozy blanket that was made especially for the hospital stay. You are so sweet, we love it.

Mom—your visit over this past week could not have been timed more perfectly. Your help was heaven-sent. Thank you for everything.

And last, thank you to everyone who has prayed and fasted in our behalf. It has been so humbling to see such an outpouring of love and support and friendship.

18 comments:

Dawn said...

I'm glad to hear he's home. It sounds like you guys have a long road ahead of you. Just take it a day at a time. You both are such troopers. I wish I could come to cali to visit you....one day. I love you both.

p.s. Geri I love the heart earrings. Super cute!

the hawker's said...

We sure love you guys! So happy you're home, Jason! You just keep getting better and taking care of yourself, and we'll just keep praying for ya! Sure love you two! Some of the best and strongest people we know!

Lucy said...

We are all here rooting you on!
xoxo

Nycole said...

Hi. My name is Nycole- I stumbled onto your blog and it made me really happy. I've read back a few pages now and got teared up about our similarities. My husband is 29 and has CF- we are an LDS couple in Boise. I can relate to everything you talk about- the lung function, hemoptysis, hospital- everything! "We" are inching closer to lung transplantation. This may sound weird, but it has been really...refreshing...finding your blog. Sorry if I'm being a creeper!

nycolethomas@gmail.com

Aubrey said...

oh bless you two. So happy he's home. Game faces on, you go. We'll continue to pray for you.

merlene said...

Wish I could come down!!! I have to have oxygen at night so that is a bit if a problem. You are in our thoughts & prayers many times a day we love & appreciate you both sooo much. you two are the greatest troupers if we have ever seen. Our love to you always Grandma Merlene & grandpa Elmer

Becca's Blog said...

So good to see Jason getting stronger and ready for his new lungs. Keep your game faces on!

Kayleen said...

I'm so glad he's home and improving! Wishing you both the best. You are such amazing people with a wonderful example to share with the world.

Catherine said...

you two are in my thoughts and prayers; you are both such amazing examples of strength and faith!!

Jess said...

So glad Jason is back home, you both have been in my thoughts and prayers. Give Jason a huge hug for me!

Geri, thanks so much for such a wonderful wife, friend, and support to my buddy!

Love to you both!

carla thorup said...

So glad he's back home! And here's hoping that list doesn't require too much waiting.

tetoniaidaho said...

Jason and Geri:
You have been in our prayers so much. You are such an inspiration to Michelle and I. Sometimes I wonder why some people have to have so many trials in their lives like you have had but I do know that you have blessed a lot of people lives because of your positive attitude and your love for each other. We will continue to pray for you, and thank you for your great example of how we should all be.
Ron and Michelle Berry

Anonymous said...

Sure love you two! <3

Love, Karli Shae Egbert

Cassie said...

Hugs & Kisses

Christy said...

I'm so glad he's home and I'm so glad he's doing so well. PLEASE let us know if you need anything! It's so amazing that your family and friends have come and are coming to help out. What a blessing! Don't forget that you have us too though. We love you guys and want to help in any way we can. :)

Nuha said...

I'm sure it's a lot to take in, but I trust that it feels so good to be home. I'm keeping you both in my thoughts.

xo
http://nuhasofiyan.blogspot.com

communikate. said...

Glad to read he's home! Speedy recovery and crossing my fingers you guys don't have a looong wait. :)

The Mickelsen Gang said...

I love you guys so much. I wish so bad I could come help!!! Praying si hard for you both! Thanks for being such great ecamples!!!